What You Need to Know if You Have a Child Enrolled in MDCP
Rights and Responsibilities of Families, Primary Caregivers and Independent Participants
The family/primary caregiver and independent participant has certain rights described below:
- You choose participation in the Medically Dependent Children Program (MDCP), institutional care or neither.
- You choose the provider of MDCP services. You are not limited to currently enrolled MDCP providers; however, your selected provider may not be paid for any services delivered before they enroll as an MDCP provider. MDCP policy applies in the final selection of chosen providers where a bidding process is required. You may request that an agency send a different employee from their agency.
- You choose the MDCP services for your child recognizing:
- the participant's needs and available resources,
- how various MDCP services may be used.
- You may make minor scheduling changes for respite and adjunct supports. These changes:
- must not leave your child without MDCP services for more than a month; and
- must not result in an overall annual increase in services.
- 50 percent increase (or greater) in monthly direct services due to carryover of unused hours must have prior approval by DADS staff.
- You have the right to receive a copy of all documentation required by MDCP for services provided.
- You have the right to appeal any reduction, denial, or termination of MDCP services.
- Your responsibilities — As parent/primary caregiver of a MDCP participant or as an independent participant, you have certain responsibilities. Failure to fulfill the responsibilities marked with an * can result in loss of eligibility for MDCP. Your responsibilities include the following:
- You must complete and return the required application materials within 30 days of the date of the letter that accompanied the application.
- You must participate in the eligibility determination process, the care planning process, and the implementation of the Individual Plan of Care (IPC).
- You must provide all information needed to determine financial and medical eligibility for MDCP services.
- You must return a signed IPC within the required time frame.
- You must use MDCP services monthly.
- You must comply with your responsibilities as outlined on this document.
- You must provide routine care for your child.
- You must use non-waiver services before using waiver services to meet your child's needs.
- You are responsible for your child's basic child care.
- You must use waiver services as described in the IPC. Among other things, this means you may not use MDCP services to serve non-MDCP participants, that you may not use respite services to meet your child care needs while you are at work, in school or in job training, and that MDCP providers will perform MDCP services only as authorized.
- You are responsible for selecting providers and providing training about your child to your MDCP providers.
- You are responsible for the monitoring and supervision of all MDCP providers.
- You are responsible for reporting the following events to your MDCP case manager within two working days of the event:
- changes in your child's income, resources or living arrangement;
- changes in your child's medical condition that are expected to be long term (improvement or worsening);
- gain or loss of financial assistance (including Supplemental Security Income);
- settlement of a law suit; receipt of services from other programs (e.g., Medicaid home health, CCP, other respite programs, school services, or private insurance, etc.)
- any changes that might affect your child's need for MDCP services;
- problems with MDCP services or providers of service, or anytime a MDCP provider stops providing service
- You are responsible for maintaining the most recent seven days of DADS service delivery documentation in your home and making them available to DADS staff upon request.
Children and Nursing Homes
Opportunities for Children to Return Home
The Medically Dependent Children Program (MDCP) is a Medicaid waiver program that provides respite care and other supports, such as home modifications and adaptive aids, for families with medically involved children and young adults. If your child, who is under age 21, has been in a Texas nursing home or is currently in a Texas nursing home, MDCP may be able to help him or her return home.
Who to Contact
A limited number of children can be served. Children are served on a first-come, first-served basis.
If you would like more information or would like to add a child's name to the interest list, please contact the MDCP staff by telephone, fax, email or letter.
Texas Department of Aging and Disability Services
Medically Dependent Children Program
701 West 51st St.
Austin, TX 78751-2312
Children in Nursing Homes Rules
Information about children living in nursing homes can be found in the Texas Administrative Code at:
- Texas Administrative Code, Title 40, Part 1, Chapter 51: Medically Dependent Children Program
- Texas Administrative Code, Title 25, Part 1, Chapter 34, Waiver Program for Medically Dependent Children
- Access Unlimited — A collection of health- and disability-related websites with more than 2,000 links.
- ComeUnity.com — Articles, resources and online support for parents of children with disabilities and special needs.
- DisabilityMall.com — Information on products, resources, and services available for people who are disabled, physically challenged, elderly, as well as caregivers and health care professionals.
- Exceptional Parent Magazine — Online edition of Exceptional Parent Magazine.
- The Family Village — A global community of disability-related resources.
- Washington State Fathers Network — Aimed at fathers and families raising children with special health care needs and developmental disabilities.
- Homemods.org — A service of The National Resource Center on Supportive Housing and Home Modification, which is a university-based, nonprofit organization dedicated to promoting aging in place and independent living for persons of all ages and abilities.
- MUMS National Parent-to-Parent Network — A national parent-to-parent network for parents or care providers of a child with a disability.
- National ChildCare Information Center — A national resource that links information and people to complement, enhance and promote the child care delivery system.
- Texas Technology Access Program — Promotes independence for people with disabilities through access to technology.
- Texas Department of Family and Protective Services — Informs parents and the public about child care and about the histories of specific homes, child-care operations and child-placing agencies in complying with minimum standards of care.